It's been two whole months. Wow. I a lot has happened since. First and foremost, Graham is doing GREAT! He's at home running (!!!) and playing constantly. He...

Two things are simultaneously true - we are over the moon that Graham received a heart transplant and our hearts are breaking for the donor's family. We will...

This post is definitely more of a processing/therapeutic post on my end. Today was a tough day. Graham is doing great, but it was a reminder of how...

3 months...it's a milestone that makes me lose my breath a little. In the grand scheme, we were told 6-12 months. I see parents in online groups who are...

It’s been a hot second since we’ve updated. Graham has been good! Our big highlight is his NG tube is out, and he has been eating better! He...

Hi All! Graham was able to WALK out of the unit (with the help of a walker) to get to the playroom this week. He loves the playroom...

I called this post The Play Room. Graham's favorite room in the hospital is the play room which is filled with toys. The team is trying to get...

I called this post The Play Room. Graham's favorite room in the hospital is the playroom which is filled with toys. The team is trying to get him...

Happy tears fell today. With the help of PT, OT, and 2 nurses, Graham took his first steps in over 6 weeks. We are in absolute awe over...