On December 15, Isaac was once again admitted to the hospital, a year to the day since he was first flown to Seattle Children’s with severe heart failure, but this time for a heart transplant. What a year! It’s hard to believe how much has happened, how the trajectory of life has changed.

This time, Isaac’s heart transplant seemed imminent. A heart had been found—a great match. But the transplant was delayed; the donor became ill, and the risks became too high. Ultimately, the transplant was canceled. It was disappointing and frustrating, and it brought a wave of sadness. But we trust Isaac’s medical team. Their decision to wait for the right circumstances is based on caring and caution. The best possible outcome requires patience.

In the midst of the uncertainty, we are reminded of the extraordinary generosity of the donor family. Even though this heart wasn’t the right fit for Isaac, their decision to donate was a profound act of kindness. We are incredibly thankful for their willingness to give, knowing how difficult this time must be for them.

So, Isaac continues to wait. The donor and the donor’s family’s selflessness gives us hope, and we will hold that with us.