Jake's transplant surgery has begun.They took him back a little before 4:00 AM this morning.He was smiling and even sent us a thumbs-up photo right before going to...

With emotions too big to describe, we wanted to share the most incredible news: Jacob has a match for his new heart and liver!Hiss transplant surgery is scheduled...

Wednesday was an emotional day. It feels like we've said that a lot on this journey, but it was especially hard.We moved Jacob down to St. Louis. He...

It's rare for me to be speechless, but right now, we are just completely overwhelmed and in awe. From the bottom of our hearts, thank you. To everyone...

We got the call from St Louis that I think we all feared was coming. During Jacob's procedure last week, his team found that the pressures in his...

Just wanted to share a quick progress update on Jake. He’s continuing to recover and was able to return to PT today.He's still dealing with some soreness from...

After discharge yesterday afternoon, Jake was able to rest and recover at RMHC. After a long nap, he was ready for a few video games and some food....

We’re breathing a big sigh of relief. Jake’s cardiac cath is complete, and he did absolutely amazing. On the positive side, the team was able to successfully close...

Today, we enjoyed being home together a little more. We soaked in every moment of family games of Runbow and Mario Kart, pumpkin carving, bedtime tuck-ins and just...

As we approach Jake's upcoming cath on Tuesday in St Louis, I find my nerves are getting the best of me. I keep reminding myself that  life on...