To say these last few days have been difficult would be an understatement. We have been through heart surgeries and recoveries before, but this is a whole new...

Warning: there is a fully covered but intubated photo of Jacob at the end of the post. It has been a hard couple of days but Jake is...

As you may already know, towards the end of the surgery on Sunday, Jake’s blood pressure became less stable. The surgeon gave him several hours to recover, hoping...

Jake is doing amazing in surgery. His vitals are steady. The team was able to successfully repair his arch, and his native organs have now been removed. His...

Jake's transplant surgery has begun.They took him back a little before 4:00 AM this morning.He was smiling and even sent us a thumbs-up photo right before going to...

With emotions too big to describe, we wanted to share the most incredible news: Jacob has a match for his new heart and liver!Hiss transplant surgery is scheduled...

Wednesday was an emotional day. It feels like we've said that a lot on this journey, but it was especially hard.We moved Jacob down to St. Louis. He...

It's rare for me to be speechless, but right now, we are just completely overwhelmed and in awe. From the bottom of our hearts, thank you. To everyone...

We got the call from St Louis that I think we all feared was coming. During Jacob's procedure last week, his team found that the pressures in his...

Just wanted to share a quick progress update on Jake. He’s continuing to recover and was able to return to PT today.He's still dealing with some soreness from...