I didn’t do a post yesterday because not much has changed. He’s still going great, except for his fevers every night. Doctors still can’t figure out where they are coming from. More tests were ran yesterday and today and there are still no clear answer for the fevers. Our daily schedule will be the same until he gets out of here. Tweaking his insulin, hopefully continue to go down as his tube feeds as he eats more foods and controlling his pain. Luckily he is already off all iv pain meds so he is doing great with that. Spacing out his narcotic pain meds will be the next step for that.
The hospital has tutors so he will be starting online school work tomorrow for a few hours. It will be good to start getting back on a schedule even though we are still on the hospital.
Thank you all for the continued prayers.
Please share the Chipotle fundraiser for Monday, 4/4 from 5-9pm. Proceeds will go to COTA for Kason’s Journey to help with transplant related expenses. We still have to be in Cincinnati for 4-6 weeks, plus every 3 months for 18 months after surgery. Travel and missed work hours have added up and will continue to throughout this journey so our fundraising is extremely important to keep us afloat
