We got some unexpected news at Kingston’s doctor appointment from his GI doctor and transplant team
He had lab work done and INR went up to 4 which isn’t good so we’re back at Children’s getting a Vit K injection before going back home. The team is asking for exception points to take Kingston’s PELD score from 6 to 30 which is HUGE for him. Higher score=better chance for a liver
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!!!Update his score was 32 without exception points. They are going to ask for more points becaus eof the life quatitly the itching that comes from this disease is diplitating, not sleepiong well, hard to breathe, etc. But on the other hand we also have great news!!!
KINGSTONS IS NOW ON THE TRANSPLANT LIST! And been advised to stay by phone, now its a waiting game.