She has had some bleeding problems over the last week. Bloody noses that don’t stop for quite some time and a few episodes of vomiting blood from her healing mucositis. This is likely because of her platelets. She has needed 2 platelets transfusions and 2 blood transfusions. This is pretty normal after transplant and can be managed outpatient. She did have an allergic reaction to her 2nd transfusion of platelets which was pretty bad.

Unfortunately, her CMV (cytelomegaly virus) reactivated in her body after transplant and that is what is delaying her discharge. They need to treat the CMV to keep from it causing complications. Due to her need for transfusions, she has to be on a special medication that requires extra cautious fluid management. The usual medicine they use to treat and can be given at home, can drop blood counts, which could be problematic for her.

(Sawyer had CMV reactivate as well but, she was able to be treated outpatient since all her blood counts were good.)

There is still a small possibility that they will allow us to go home and manage this other drug at home. We are just waiting on the whole team to be here tomorrow and make the best decision for her. Obviously, we are bummed to not be going home tomorrow but, we want the best for Harper. The last thing we want to do is go home and have to be readmitted.