December 1st was National Biliary Atresia Awareness Day!

Before Lucy was born, we had never heard of biliary atresia, and we knew about as much about the liver as we learned in high school biology. I remember staring at the doctor when he first said those words. As we asked more questions, the word “transplant” came up and it was like a punch in the stomach. I never would have ever believed we would be facing something like that.

We are sharing so that more people will be aware of biliary artesia. Currently, there is no known cause and no known cure. Lucy will be dealing with effects of the disease her entire life. We could not be prouder of this smiling little girl. She, like all BA kids, has had to fight like hell to be here today, but she is one of the happiest kids you will ever meet. We will forever be grateful to the incredible hospital staff who helped get us to this point, and of course the family that made the decision to save Lucy’s life nine months ago.