Hello, my name is Lilliann Lay but I go by Lilly. I am in the process of getting my second double lung transplant. The first one lasted me 14 years, and of course we are hoping this will last me much longer. I have a genetic disorder that is rare. Of course! Lol! Because if you know me, you know I don’t do anything easy. My genetic condition is ABCA3 Gene Mutation Surfactant B Deficiency. So of course, being on the transplant list will require us moving to St. Louis where the transplant will be done and staying there until after the transplant. I will have to stay home for a year while my immune system “heals”, even though it really won’t ever heal.

I may end up in the hospital a lot, but I still do a lot of acts of community service with raising money for schools for others, doing yard sales for the Angel Tree, and recognizing nurses in hospitals, schools and doctors’ offices. Along with this, I am staying on top of my grades and getting nominated for the National Honor Society. Any help you can give toward COTA for Lungs for Lilly will be greatly appreciated. Thank you!

The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.