Wanted to share something fun two sweet girls have been working on for our Mighty Mac! My sister in law Nicki and her friend Tara have worked on this design that will be available as a t shirt soon! We have prayers warriors across the country and world and if you want to rally around our mighty Mac and his battle all proceeds will go to COTA for Mac to assist with a lifetime of transplant-related expenses. He’ll need another kidney hopefully very far into adulthood. It was so fun to see this design come to life- and I hope you can have a giggle
Prayers:
Rest, peace, fever free, pain free, breathing well, and everything onward and upward for both Andy and Mac! Mac’s kidney function has returned to normal!
what a sight. The surgeon said as soon as the kidney was transplanted his creatinine dropped showing immediate function. And as of last night it was the best it’s ever been his entire life. Your prayers are so felt and I love reading all your messages. I keep them and reread your prayers
Hebrews 11:1
Day 11 (part 2)
We celebrate amidst trials & when in ICU they’re often countless. Faith is a muscle to grow. It’s tested, nourished (or deprived) and then grown(or not) painfully. My dance coach used to challenge our muscle woes with “pain is weakness leaving the body!” That’s how I imagine fear + trials + faith correlate.
Last night I was trembling around 9 pm. Trying to eat my lunch, in the parent room while they attempted to get an arterial line monitor for the 3rd time.
The highs, the adrenaline, my blood sugar all came crashing in. The constant critical changes, Mac’s blood sugar plummeting, fevers sky high not affected by meds. And doctors theories on fevers post transplant. And a child screaming he needed to poop but didn’t have the muscle.
I sat there trembling & opened my Bible to Psalm 18, Mac’s dedicated birth verse in NICU.
“The Lord is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge”
My trembling stopped.
Reintroduction to trials-trembling returned.
(Part 3)
Refocused, reread verse till trembling stopped. I looked out over the skyline of Pittsburgh. Bridges over water and all sorts of crazy road patterns. Reminded me the divine path that got us here. The transplant journey has been 9 months in the making. Road began when we discover Mac is at point to require transplant. Roadblock: “not a candidate” by home institution.
Followed by months of blessings:
-surgeon name dropped in my inbox divinely through grassroots efforts of our friend Rachel
-released from home institution
-insurance approval
-scheduling for transplant eval in Pittsburgh
-fun impromptu family trip to Pittsburgh for eval
-Success, Mac is approved
-Andy is evaluated
-Andy approved
I’m reminded:
Only God created this crazy road that got us here. And I’m sure you can relate in some way in your life. He does require our faith. In life like the ICU- trials usually come like dominoes. They are painful, intense, but they are not in vain. They are used to grow faith. Onward, prayer soldiers
