The fundraising goal has recently been updated per a conversation between Paige’s family and Rick Lofgren, COTA President & CEO. This letter below from Rick explains the recent change:

Greetings from COTA!

I want to congratulate the COTA for Pray for Paige volunteer team for raising funds for the campaign in honor of Paige.

When I set the campaign fundraising goals with all of our families, I try to do so knowing that we want to raise funds for several years, and knowing that many volunteer teams have had more challenges during the pandemic and fundraising these days happens very differently than in the past. With this in mind, for the past 18 months I have suggested goals to COTA patients that I believe is needed for any patient’s long-term expenses and transplant-related costs.

For example, most of our patients will have $7,500 to $10,000 in annual co-payments, deductibles, and medications, as well as $10,000 or more of additional costs for clinic visits and a similar amount for travel to the transplant center.

In this case I spoke with Lisa and Mike this week and suggested that we lower the goal to better reflect what I believe is the true long-term expense that a patient will incur in the future. Because of this, I have decreased the goal for the COTA for Pray for Paige campaign (due to better than expect insurance payment outcomes) from $50,000 to $25,000 to reflect what I believe will be actual costs going forward.

Please know there are many factors in this and that I bear the responsibility of justifying this to anyone who asks, and am happy to do this as I believe that it is the right thing to do given her current health status

Thank you for all the work and support you have provided to this point, and please keep Paige and her family in your prayers as they prepare for her transplant.