For those who have been following our daughter’s liver journey and praying for her, I wanted to explain a little about her PELD score and what it means.

Our daughter is only 6 years old, and her current PELD score is 31 of 40 (highest score).

PELD stands for Pediatric End-Stage Liver Disease. It is a scoring system used for children under 12 who are waiting for a liver transplant. The score helps the transplant team determine how seriously a child is affected by liver disease and how urgently they need a transplant.

The higher the PELD score, the more medically serious the situation is. A score of 31 is not a small number. It reflects significant liver disease in a little six-year-old who is waiting for a life-saving organ.

Her PELD score can change as her labs and medical condition change, so her transplant team watches her very closely. But right now, 31 is a reminder of just how much she needs a liver transplant.

When we ask you to pray, we aren’t asking for prayers simply because she’s on a transplant list. We are asking you to pray for a precious little girl whose body is fighting a battle that no six-year-old should have to face.

Please pray that:

Her liver will continue to hold on while she waits.

Her body will remain strong enough for transplant.

Her doctors and transplant team will have wisdom in every decision.

A suitable donor liver will become available at the right time.

And most importantly, that God will protect her, strengthen her, and carry her through every step of this journey.

We are incredibly thankful for every person who has chosen to stand beside our family, pray for our daughter, and help us carry this burden. Every prayer truly means more to us than we can put into words.