In honor of Rare Disease Day (February 28), here’s a long overdue update on Stanley, whose many health issues stem from his initial diagnosis with the rare liver...

Today marks the second anniversary of Stanley’s liver transplant. Looking back at photos of Stanley from 2016, it’s hard to believe the baby in those pictures is the...

Left: Stanley right before he went into surgery. Right: Stanley this morning. Today is Stanley's first liverversary, and we wanted to share the letter we sent to his...

“Nothing here is promised, not one day.” — Lin-Manuel Miranda It was a Tuesday. I don’t remember anything about the weather, though I suppose it wasn’t raining or...

Stanley on Thanksgiving Eve, Four Months Post-Transplant   There are these two young fish swimming along, and they happen to meet an older fish swimming the other way,...

There is a scene in Disney’s Alice in Wonderland where Alice tumbles down the rabbit hole. At first she’s scared. Then, realizing the rabbit hole plunges down and...

It’s the morning of day twenty-two post-op. That means that twenty-two days ago, sometime in the predawn darkness of Sunday, the doctors came into the overly bright waiting...

At 5:00 a.m. this morning, I received the following text from Jeb: “Stanley has to be reintubated. His chest congestion is back along with intermittent fever.” I immediately started...

It's been 10 days since Stanley's liver transplant and two days since the surgery to close his abdomen. Today he was finally extubated and the bandage was removed from...

Stanley is alert and comfortable and able to crack a few little smiles. Soon he'll be chowing on his first real non-medical food in ages. This is what...