After his initial diagnosis and the many surgeries, Clayton and our family started to settle in to our new normal. Clayton began taking a handful of medications to help him balance out the levels of iron, phosphorus, calcium and potassium in his blood. We visited our nephrologist every 3-6 months so that he could take labwork and adjust the levels of Clayton’s medications. 

It was amazing to see how quickly Clayton adjusted to the routine of regular doctor visits and lab draws. I remember when he was about 20 months old and he had to have blood drawn. He climbed up into the nephrologist’s chair alone and extended his arm and waited for the blood draw. He never needed numbing or help holding still, even as a young child. It felt like he accepted his new normal so quickly.

Other than Doctor visits and medications, the biggest impact of Clayton’s diagnosis was an increased need for water and to use the bathroom. We never go anywhere without water for him. He often drinks a full 32 oz water bottle in a single drink. His thirst is a strong physical need for him.

Thankfully, even with his kidney diagnosis, Clayton has been able to develop confidence and a personal identity not just around his disease. He has worked hard to be a good student, has served on student council for 4 years, plays basketball and swims on the swim team, and has multiple musical talents. He is an accomplished pianist, plays the tuba in the school band, and recently played the role of Jafar in the school musical.

I’m happy to see that chronic kidney disease doesn’t define Clayton, and that he continues to persevere despite his condition.