Jayla is a 12 year old little girl, who at 12 months old was diagnosed with a genetic organ disease called Nephropathic Cystinosis. This is a disease that affects the kidney’s, pancreas & liver. It is currently affecting her kidney’s, from the time she was 12 months to 10 years old she was on 15 medications 4x a day to ensure that her little body was able to gain and grow like a normal child her age. This disease also carries alot of other medical diagnosis that go along with Nepthropathic Cystinosis, one of the diagonsis’ with her disease is a form of Rickets, which has caused her knees to grow faster on the inner side and slower on the outter side of her knee which left her “Knock Kneed”. On May 3rd, 2019, Jayla went through double knee surgery to have 2 plates placed on the inside of her knees to slow the growth of the inner knee to allow them to straighten out. In June of 2017, Jayla went on Peritoneal Dialysis, which is done in the comforts of her home every night for 11 hours. In February 2019, Jayla’s doctors started talking to her parents about transplant. They made the decision to have her placed on the living donor list, where her mom was tested in May to see if she was a match. A few weeks later they found out she was in fact a perfect match for Jayla. To ensure that her moms health was well enough to donate to Jayla, she went thru months of tests & dr appointments. On September 6th, they called stating that her health was great and Jayla would in fact be receiving her moms left kidney. So after months of waiting and lots of prayers, the Lord answered those prayers by allowing her to get a second chance at a normal life on October 25, 2019. Jayla will finally get to be a normal 12 year old little girl & we couldnt be more excited for her to start this new journey. She is a very strong girl for going thru so much in such a short life.
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Always in our thoughts and prayers!! Love you!