My husband Jesse is 1 out of 30,000 individuals diagnosed with Cystic Fibrosis and awaiting a double-lung transplant. As Jesse’s health has been rapidly deteriorating, Jesse and his parents have moved to Pittsburgh to await a call for new lungs. Jesse’s parents have selflessly left their life in New Jersey to take care of their son. Our infant daughter and I have not seen our husband and daddy since February because of the risks of Covid-19. If you are able to make a donation to COTA in honor of Jesse or share this link, we would be forever grateful. At the end of the day, we want Jesse to come back home to his family and friends. Jesse is one of the most selfless people you would ever meet. Please help our family get the lungs and care Jesse so desperately needs by donating to COTA. All we want is for Jesse to get better and live the life our family has been dreaming of.

An estimated 30,000 Americans have been diagnosed and living with CF today. The average lung transplant and follow-up care for CF patient can cost more than $1.4 million according to an article in September 2017 issue of Fortune Magazine. Today, thanks to improved health insurance coverage few CF patients are required to pay this amount. It is not uncommon, however for a lung transplant patient to have out-of-pocket expenses of more than $25,000 for the transplant and follow-up care during the first months following transplant plus the cost of relocating to Pittsburgh for at least 6 months. After receiving a lung transplant, a CF patient can face $10,000 annually for medications and regular clinic visits.

At this time Jesse and his family have partnered with the Children’s Organ Transplant Association for help in raising funds to assist with transplant-related expenses. From the bottom of our hearts we thank you for visiting this COTA fundraising site. Through our love and support we can help Jesse breathe a little easier.

The Children’s Organ Transplant Association (COTA) helps children who need a life-saving transplant by providing fundraising assistance and family support. COTA also works with individuals of any age with a single-gene disorder such as Polycystic Kidney Disease, Cystic Fibrosis or Sickle Cell Disease. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy families. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free of charge and gifts to COTA are tax deductible to the fullest extent of the law.