I can’t believe we haven’t shared an update since August! Time certainly has flown by these last several months… Today is a special day, because it marks one...

JOEY IS HOME! On June 22nd, Joey was finally discharged from the hospital! In total, he spent roughly five months there. A very long, very hard five months,...

In my last post I made the mistake of putting into the universe that we were likely going to go home by the end May… I should have...

Joey has continued to improve, slowly but surely. The rise in his liver enzymes turned out to be due to mild organ rejection. He was treated with higher...

I wanted to start by thanking everyone for your patience, I know it has been some time since I last posted an update. For a quick recap, when...

Gosh, it has been a crazy couple of weeks. Where to start… BLUF: Joey is still in the PICU, and remains critical with acute liver failure. Again. His...

What we thought would be an exciting week back at home, took a turn on Monday night. Joey started re-accumulating fluid in his abdomen, at a rather rapid...

A moment of reflection Chris got a new car last October. He traded in his beamer for a Hybrid Honda Accord. If you know Chris, you know he loved...

I am so grateful for this platform to share updates with everyone, but it means so much more to me than that. Sharing Joey’s journey here helps me...

Just a quick recap to start: Joey was readmitted last Friday, the 9th, after his lab work from the previous day at clinic showed an elevation is his...