UPDATE-

After a long weekend – started Friday, got some lab results back that were concerning – Dr’s scheduled an appointment for today (10/17).  That seemed like a long way away on Friday.  Olivia came home from school and all she wanted to do was sleep.  We let her sleep as much as she wanted.  She was probably only up 6 hours the whole weekend.  Sunday night we noticed a rash on her trunk and arms – this is when google and the internet are not your friends.  We email the Dr’s Monday AM – they say to wait till Thursday – see how it goes – oh yeah, pack a bag just in case!   Mom and I are getting worried – sleeping alot, not eating, just blah (and did I mention grumpy).

UGHHHHH.  So after a long week we went to the U this morning.  Got labs right away.  Toured dialysis unit 🙁 

Met with Nephrologist – labs improved!!!!!!!!!!!!!  Creatin still bad, but everything else stabilized.  NO DIALYSIS, NO OVERNIGHT STAY! YAY!

So for the time being – it all stays the same.  Dodged the dialysis bullet for now – wait and see what the next set of labs brings.  Big thanks to AUNT APRIL – thanks for being with us today and always being there for us.

Fingers crossed a kidney shows up soon….