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Our Story

The Children's Organ Transplant Association (COTA) helps children and young adults like Alex who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of Alex T. helps meet transplant-related expenses. COTA’s services are free to Alex and his family, and gifts to COTA are tax deductible to the fullest extent of the law.

Alex is 14, has Autism, Epilepsy, a Connective Tissue Disorder, and was diagnosed with Chronic Pancreatitis in April of 2017. Since then he has not been able to attend school, and has been hospitalized monthly (sometimes months long) with reoccurring bouts of debilitating Pancreatitis. Pancreatitis is extremely rare in children, so treatment and hospitalization has been at Cincinnati Children's Hospital which is not only one of the top...

Updates

 

Islet Cell Function

Unfortunately Alex is having some issues with consistently higher than normal glucose, and is now requiring more than just periodic insulin boluses.  He is back on a continuous insulin basal rate via his pump as of last night.  We always knew this Continue Reading »

Thank you Wings Etc.!!!

Thank you again to Wings Etc. and all of the very special people that made the Play It Forward event happen. It was so much fun, and absolutely amazing to see all of you come together for COTA in honor of OUR family. It truly means the world to all Continue Reading »

Wings Etc. Play It Forward Event

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Update/Progress

Wow!  These last two months have just flown!! Alex and our family have been very busy, but definitely in a good way!  Alex has attended many appointments with all specialties in Cincinnati and is continuing to make significant progress.  He has Continue Reading »

Prayers Needed

Upon arrival in Cincinnati for a follow-up appointment, initially Alex was difficult to awaken, couldn’t understand directions when he did wake, had an elevated glucose, staggered when he tried to walk, became extremely nauseous, and then began Continue Reading »

Update

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Update

Just a quick Alex update...He still has his feeding tube, but only for precautionary reasons at this point. He has been eating anything and everything, has been very active with only periodic mild to moderate pain, and his insulin has been reduced Continue Reading »

From one superhero to another...

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From one superhero to another...

From one superhero to another...Chuck Moore you are absolutely amazing, a true hero, and have a heart of gold!!! Thank you for this. It means the world to Guillermo Alex Trancoso (and me!!!)!!! #TeamFireball Continue Reading »

Dr. Elder

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Dr. Elder

Dr. Elder-Alex’s Endocrinologist = determination and absolute definitive results. There is never a question if something is going to happen or be successful with Dr. Elder. She makes mountains move for her patients, including Alex. She is most Continue Reading »

Dr. Lin

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Dr. Lin

What a day yesterday!!!!We got home from MI (lake ) Thursday night at 11:30pm, went to bed at 1am, woke up at 2am, and were on the road for 4 1/2 hours to see this amazing man at Cincinnati Children’s Friday morning...Dr. Tom Lin. I get emotional Continue Reading »

HOME!!

  Continue Reading »

THE CENTRAL LINE IS COMING OUT!!!!

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CENTRAL LINE IS COMING OUT!!

The central line is about to come out... Continue Reading »

Dr. Nathan, Alex's Surgeon

Thank you Dr. Nathan-best surgeon/miracle worker EVER!!! Alex got a good report. He gets his central line out tomorrow, gets to go home after his appointment tomorrow, and will follow-up in Cincinnati again next week. Continue Reading »

Thank you Kevin and the Ryan Seacrest Studio

This is Kevin-one of the MANY very special people that have so greatly impacted our lives throughout our journey at Cincinnati Children’s Hospital. He is absolutely amazing, and I truly don’t know what we would have done without him and the gang Continue Reading »

Thank you Ms. Mary Beth Platen

We are counting our blessings on this special day, and I cannot leave out this amazing woman..Ms. Mary Beth, Alex’s teacher while hospitalized. She is one of those people that make you want to get out in your community and change someone’s life. Continue Reading »

Pokemon Hunting in Cincinnati

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Good News!!

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Good News!!

Got the good news today...we get to go home!!! Hopefully Tuesday evening, or Wednesday at the latest. This has been a very long four months (year and three months to be exact), but I am grateful beyond words for the top notch medical care Alex has Continue Reading »

New Central Line

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New Central Line

New central line being placed under anesthesia this morning... Continue Reading »

PICC Leak

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PICC Leak

Because if something weird and crazy is going to happen, it’s going to happen to Alex...he has a leak in his picc line (it’s a double lumen). After I unhooked him from tpn and began to flush/block the line this afternoon, I noticed a leak in the Continue Reading »

Alex Update

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Alex Update

Alex update: Continue Reading »

Mixed Meal Tolerance Test

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Mixed Meal Tolerance Test

Mixed Meal Tolerance Test today!!! (The test consists of drinking (or consuming via the feeding tube) a "mixed meal” such as Boost or Ensure that contains protein, carbohydrates, and fat. The goal of the test is to measure how well the islet cells Continue Reading »

New formula-progress!!

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New formula-progress!

We have had two days of outpatient appointments with Pain, GI, and Surgery-and we’re making progress!! Alex has been on a new hypoallergenic formula at a lower rate, tpn, and we’re almost completely weaned off opioids!! One day at a time!!! Continue Reading »

Incredibles!!

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Discharge=Incredibles!!

Alex got discharged to Ronald McDonald House yesterday (on tpn). Incredibles today it is!!! Continue Reading »

Michael Lorenzen

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Michael Lorenzen

Thank you Michael Lorenzen for taking time out of your day today to spend with my boys. It meant the world to them, and you are truly a stand-up guy. You have made some true fans out of me and my boys!!! #notallheroeswearcapes Continue Reading »

Gabe's Graduation

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Gabe's Graduation

I was able to attend my oldest son Gabriel’s high school graduation open house Saturday (in South Bend), and it was so wonderful to be home and spend time with family and friends. I am blessed to be surrounded by so many wonderful people that made Continue Reading »

Procedure

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Procedure

Alex just got taken into the OR for an upper endoscopy, biopsies, and pyloric Botox injections. The team is concerned about a partial bowel obstruction; however, are proceeding with conservative treatment at this point with the hopes that the Botox Continue Reading »

Botox Injections

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Botox Injections

The procedure went really well, and tpn has been started. Now all we can do is wait. Thank you all for your messages, prayers, and well-wishes. I am so very hopeful. My father flew in from Florida Wednesday in hopes that I would be able to attend my Continue Reading »

Hospitalization

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Hospitalization

Alex was admitted again this afternoon. He will be starting tpn (nutrition via his central line vs. formula in his feeding tube) in hopes of getting him back on his feet again. We are bummed that we will not be making it to Gabey’s graduation, but Continue Reading »

Miserable

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Miserable

This is what Alex looks like tonight. My heart breaks for him. I am hoping he will start tpn tomorrow. Continue Reading »

Weight Loss, Fatigue, and Nausea

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Weight Loss, Fatigue, and Nausea

Update on Alex-He thoroughly enjoyed time with family this weekend; however, has had some consistent episodes of pain, nausea, vomiting, and extreme fatigue. He is not drinking anymore, and has no interest even in popsicles. He had abnormal X-rays Continue Reading »

Surprise Visits

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Surprise Visits

Alex got discharged from the hospital yesterday!! He got a surprise weekend visit from his dad, brothers, and Grandma Rose! ??Today we are at our favorite Cincinnati movie theater watching the very much awaited Deadpool 2. Hopefully, depending on Continue Reading »

Progress...

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Progress...

Update on Alex-He is definitely making some progress since his last surgery, but is still having similar issues. He is painful, but not in debilitating pain. He’s still nauseous, but not constantly bucket-hugging. He’s not as active as I was Continue Reading »

Flowers

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Flowers

I came back to Alex’s hospital room after taking a break at the Ronald McDonald House, and I had a very special surprise at my desk... thank you whoever sent these. This was so very much needed and appreciated. Continue Reading »

Abdominal Distension

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Abdominal Distension

Alex woke up today with abdominal distension, extreme pain, and nausea. Feeds have been stopped, he will be having an X-ray to evaluate bowel patterns, and total parenteral nutrition (feeding intravenously) will be started.One day at a time!! Continue Reading »

Bengals Visited Today

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Bengals Visited Today

Bengals visited today!! Continue Reading »

Progress!!

We are making progress!! Alex is out of ICU and back on the endocrine floor. He has already walked the unit with his Physical Therapist and is currently sitting in a chair. We are waiting on the bowels to get active to begin nutrition, but we are Continue Reading »

My Super Hero!!

Alex’s fever finally came down last night and they’ve been able to manage his pain so much better today. Alex has most definitely maintained his super hero status!!! Continue Reading »

Post-Op

Alex is stable. We are just having a very difficult time managing his pain, so today has been very rough. We will get there. Continue Reading »

ICU

Alex is out of surgery and in icu. There was a large amount of scarring (all over). The closed loop obstruction in the small bowel was released, and no resection was needed (which is fabulous news). He will be in icu for the next couple of days, and Continue Reading »

Emergency Surgery

They are taking Alex for emergency surgery for what appears to be a closed loop small bowel obstruction. Dr. Nathan will be operating. Continue Reading »

Severe Pain

I have not seen Alex in this much pain in a very very long time. He’s maxed out his dose of Phenergan, is still vomiting, and has maxed out on Dilaudid. They’re sending him in for X-rays... Continue Reading »

Hospitalization

Vomiting and severe pain started at 5am... Continue Reading »

Go Reds!

Alex is loving his very first MLB game!!! Continue Reading »

Happy Saturday!

Happy Saturday!! We are trying the reliefband today!! Alex has a very special weekend with friends visiting from out-of-town, and attending the Cubs/Reds game tonight. Botox procedure is scheduled for Friday. Have a great weekend everyone, we plan Continue Reading »

Haircut!!

I finally talked Alex into getting a haircut!! We loved the shop and the barber, Onyx. It’s in my favorite part of Cincinnati, and a stylist there is able to do the Michael B Jordan locs that Alex has been wanting for forever and a day (thus the Continue Reading »

Back to vomiting...

Unfortunately Alex spent 5am-9am vomiting... Continue Reading »

Reliefband

Unfortunately Alex had a very rough night last night and woke up the same this morning-nauseous and very painful. We then of course had a very long but interesting day of appointments. Dr. Lin is thinking the gastroparesis (delayed stomach emptying) Continue Reading »

Go Bengals!!

Thank you Giovani Bernard for coming to visit!! Continue Reading »

Mother's Day!

What a blessing today was!! I woke up to flowers, balloons, cards, and breakfast from Fabian and the boys. The hospital surprised all of the mothers with a Kendra Scott gift bag (generously donated by Kendra Scott), and the Ronald McDonald House Continue Reading »

Great Day!

Today is a great day for a good day!! Continue Reading »

Music Therapy!!

Music Therapy!!!! We love our Music Therapist Nate who is not only so very talented, but will always put a smile on your face... Continue Reading »

Good Morning!

I just love these two...good morning, with love from Alex and Ling! Continue Reading »

Cowboy Ling

It’s a cowboy Ling type of day... Continue Reading »

Hospital Admission

Alex was admitted last night due to elevated platelets and inflammatory pockets in the intestines (found on X-ray). He was absolutely miserable yesterday with abdominal pain, nausea, and vomiting. They stopped his feeds completely to give his Continue Reading »

At the ER...

At the ER...pain to PICC line insertion area and continued vomiting... Continue Reading »

Back to bucket-hugging...

Same scenario as yesterday...great day that suddenly leads into vomiting, pain, and bucket-hugging... Continue Reading »

Great Selfie Alex!!

I found this picture on Alex’s phone the other day, and I just love it!!! Continue Reading »

Nurses Week 2018

Thank you to all of our amazing nurses. We couldn’t do this without you and you all are amazing!! Continue Reading »

Possibly overdid it today...

Not sure if we overdid it today, but we’re back to vomiting... ???? Continue Reading »

Busy day of appointments...

Busy day today with 4 appointments!! It started off not so great with a horrible bout of nausea and vomiting first thing this morning, but by late afternoon Alex is feeling so much better. I think it’s because of the Ling snuggles. What do you Continue Reading »

Care Package

Thank you to the Foundation for Childhood Pancreatitis!!! Alex absolutely loves his care package!!! It brought a much needed smile to both of our faces!!! Continue Reading »

Family Trip to the Zoo!

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Friends, Family, and Love...

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Family, Friends, and so much Love!!!

I am so blessed!!  Gabe (my oldest) came to visit today.  He is only staying one night, but it means the world to me to have him here.  I have all four of my boys together again, and it is precious!!! Continue Reading »

Go Reds!!

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Black Panther at the Dog Park!!

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Today is ending in the dog park with the Black Panther!!

This morning started out rough, but the day is ending in the dog park with Ling, brothers, and Black Panther... Continue Reading »

There is nothing like family...and Batman!!!

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There is nothing like family...and Batman!!

There is nothing like family (and Batman, definitely nothing like Batman)!! Continue Reading »

Music Therapy!!

Alex went for a walk with his physical therapist and while he was gone I turned on his tv in the room (at the hospital), and this is what I see...I love this hospital!!!!! Continue Reading »

Cuddle Moment With Ling

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Correlation with nausea and feeds

Thank you all for your thoughts, prayers, and well-wishes. There is a definitive correlation relative to Alex’s gj feeds/rate and nausea/vomiting/pain. This is a symptom that is common for post-TPIAT patients; however, is also something that can Continue Reading »

Extreme Nausea Again

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Bucket-Hugging Nausea Again

We are back to extreme nausea and vomiting today...X-rays shortly. Prayers please. Continue Reading »

IJ Line Pulled Today!!!

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IJ Line Pulled Today!!

IJ line was pulled today!!One central line out, one more to go!! Continue Reading »

Spidey getting infused with vibranium???

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Off feeds he's Spiderman/Black Panther...

Boy Alex sure does have his ups and downs with "normal" post TPIAT nausea and what I now refer to as "bucket-hugging nausea", and I am really seeing a correlation with his feeds/window (period off of feeds). Continue Reading »

Powered By Vibranium

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Powered By Vibranium

Thank you all for your thoughts and prayers-the superhero is back!! Thank you Aunt Jenni Bruens Crowley, Uncle Mark, Mikayla and Maleah because this superhero is seriously ultra powered with vibranium!! Continue Reading »

GI Issues-Prayers Please

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Possible Virus/GI Issues

Please keep Alex in your prayers. He’s been lethargic and vomiting since yesterday, has consistently elevated glucose, a distended abdomen, and is in a significant amount of pain. Thank you. Continue Reading »

The Dynamic Duo-reunited!!

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Ling gets to come back!!

Alex received permission today from Dr. Nathan to have his service dog Ling back!!!  Yay!!  We are so excited!!! Continue Reading »

Out of ICU!!!

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Out of ICU!!

Big day today-Alex is out of the ICU!!!  He is now on the Endocrine (diabetes) floor.  His drains were pulled, his Freestyle Libre continuous glucose monitor is on and functioning, his insulin pump has been applied, and he is even doing his blood Continue Reading »

ICU

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Walking for the first time!!

Alex walked for the first time today during physical therapy!!!  I am truly amazed!! Continue Reading »

Ryan Seacrest Studio

Alex received a telephone call from Ryan Seacrest today!!!!!  (What an amazing guy!!) Continue Reading »

Talking to Ryan Seacrest

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Happy Easter!!

Alex is sitting in a chair again today, and blowing bubbles. He's in excruciating pain, but is fighting through it like a true superhero and has remained in the best of spirits (always says please and thank you, and is even trying to apologize to Continue Reading »

Post TPIAT-Days 1-3

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Ling!!

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Pre-surgical Love

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Day 2 post-op

10:43 am Continue Reading »

Day after surgery

7:55 am Continue Reading »

Surgery Day

6:15 am Continue Reading »

PICC Line today!

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Hospitalized until surgery date...

It was decided this morning by Alex's medical team that he will remain hospitalized until his TPIAT surgery on March 29th.  He is still very painful and nauseous, and not able to tolerate formula via his nj tube at this point.  He will be having a Continue Reading »

Strong Like Vibranium

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Endoscopy

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Pre Surgical Scare

TPIAT surgery is scheduled for March 29th.  We had a little hiccup/scare last week.  Alex had a recheck with the transplant surgeon and GI specialist Thursday and began having excruciating pain, nausea, and finally vomiting while in the waiting Continue Reading »

My Superhero Alex

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First MLB Game-Go Reds!!

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Happy Sunday!!

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May the 4th be with you!

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Happy Cinco De Mayo!!

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Busy Day of Appointments

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Ling says “Go Reds”! ????

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Morning Meds and New Insulin Pump

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Thank you Shana, Mike, and Abby!!

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