Our Story
Savannah is the daughter of Derrick and Alexa, and baby sister to Sawyer. She was born February 2, 2020. When Alexa was 19 weeks pregnant with Savannah, she and Derrick went to their routine anatomy ultrasound appointment. What was supposed to be a happy day to check on their little girl’s growth and to find out the gender, turned sad when the ultrasound tech detected an abnormality in Savannah’s heart....
Continue Reading »Updates
Savannah got a G button
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Savannah had surgery this morning. No more feeding tube. She now has a G button because she doesn't eat enough on her own. She is doing great! Continue Reading »
Savannah is 6 months old!!
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Savannah has been having great reports at the doctors visits. She is getting big and stronger everyday. She is 17 lbs 8.4 ounces and 26 inches long now.... Continue Reading »
Savannah is HOME!!
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Today is the day!! After 127 days in the hospital, sweet Savannah is going home for the first time This has been an incredibly rough 4 months, full of... Continue Reading »
Savannah coming home soon
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Change of plans with Savannah. Instead of the button in her abdomen, her doctor and transplant coordinator are graciously letting us go home with the NG tube. See... Continue Reading »
Few days after surgery.
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Surgery
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From Mom: She did ok with the surgery, they are putting the ng back in, but not the tpt because they think the hydrocephalus is what caused the... Continue Reading »
Savannah MRI
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04/12/2020: Savannah is having an MRI in the morning, they think she has fluid on brain that isn't draining well. They may have to place a shunt in... Continue Reading »
Savannah 4-6-20
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Savannah needs prayers
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Savannah has a rough couple of days, she has vomited a couple of times so they're holding her feedings for now and checking to see if the ng... Continue Reading »