Our Story
Hello Friends and Family! I have Cystic Fibrosis. CF is a hereditary disease that affects the lungs and digestive system. The body produces thick and sticky mucus that can clog the lungs and obstruct the pancreas. It can be life-threatening, and people with the condition tend to have a shorter-than-normal life span. At the age of 32 I gave up my career to focus on my health in January 2019....
Continue Reading »Updates
June 2021: 2 year update
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It's been almost 2 years since my transplant, so I had a clinic appt to mark the occasion.First up was bone density scan. Last time I had this... Continue Reading »
March 2021 Update: white blood cell injection
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In early February, my white blood cell counts were dangerously low. We discontinued a medication that suppresses my immune system, but the white blood cell count continued dropping.... Continue Reading »
January 2021 Update: Bronch #30 with Mitomycins
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I have been continuously having bronchoscopies every 3-4 weeks. It’s very rare and unheard of that a lung transplant patient needs constant airway dilations. I sure hope that... Continue Reading »
9/19 update: the stent is out!
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2 weeks ago I had my stent removed! I was able to stop 2 nebulized medications. And then I had another bronch this week... They placed the stent... Continue Reading »
Update 9/4/20: hand pain & bronch #25
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Last September, the week I was given the thumbs up to start driving again after my transplant, I was involved in a car accident. (I had to wait... Continue Reading »
1 Year Anniversary
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"I feel like I'm constantly worrying about the next part of my life without realizing that I'm right in the middle of what I used to look forward... Continue Reading »
Hospitalization 7/12/20: allergic reaction & hemolytic anemia
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Saturday, July 11, 2020 I am a little late in updating everyone with my most recent hospitalization. I started feeling dizzy, with tinnitus in ears, and feeling like... Continue Reading »
Hospitalization 6/10/20: an ambulance ride & pneumonia
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So much had been going on these last few weeks. I want to start by saying that I'm so grateful to my donor for my new lungs. I'd... Continue Reading »
Update 5/15/20: Quarantine
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Life in the time of quarantine has been different, but also, the same. Nick began working from home the first week of March. We haven’t been inside a... Continue Reading »