Our Story

Virginia native Jim Krause, 34, was diagnosed with cystic fibrosis at birth.Cystic Fibrosis is a degenerative, hereditary and chronic lung disease. Cystic Fibrosis has slowly, yet persistently, eroded his lung function to a meager 23%. Lung function of 23% is like an average person breathing through a cocktail straw for air. Things like walking up a flight of stairs, or walking through a grocery store rapidly became insurmountable tasks. Those...

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Updates

Breathe December 2021 Trip To The University Of Maryland Transplant Center

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 December 2021 Trip To The University Of Maryland Transplant Center It was great to meet my new future transplant team. It seems I'm doing well enough to still be on hold... Continue Reading »

Every Breath Gives Hope

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Hope For The New Year 2022 It was a great trip in December to the University Of Maryland Transplant Center. I got to meet some new doctors added... Continue Reading »

Traveling With Cystic Fibrosis

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Tomorrow we will be picking Jim up from INOVA Fairfax Hospital...YAY ! We will leave Fairfax drive to Baltimore , stay the night for an early appointment at... Continue Reading »

Another Hospital Stay

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Jim is in the hospital again getting tuned-up. His four weeks of being home, came to an end Tuesday night. Ajax cried for thirty minutes straight after Jim... Continue Reading »

The Train

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  August 14 , First day of school with students for me. bsk;'Katie went with Ed and Jim to the family transplant class. They took the train to... Continue Reading »

First Visit To The University Of Maryland Transplant Center

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First Visit To The University Of Maryland Transplant Center

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  First Visit To The University Of Maryland Transplant Center. Yesterday began with an early train ride to Baltimore. The visit went very well, many questions from the... Continue Reading »

Jimmy The healthcare Advocate Second Trip To The Hill Last Summer.

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Thank You All !

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  Thank you all who have given to COTA and shared Jimmy's COTA story. We are truly grateful for all the outpouring of support. This month has been... Continue Reading »