Our Story

Jim Krause, now 38 was diagnosed with cystic fibrosis at birth. Cystic Fibrosis is a degenerative, hereditary and chronic disease. Cystic Fibrosis in the past has slowly eroded Jim’s lung function to a meager 21%. Lung function that low is like an average person breathing through a cocktail straw for air. Things like walking up a flight of stairs, or walking through a grocery store rapidly became insurmountable tasks. Those who suffer from Cystic fibrosis have thick mucus clogging their lungs this leads to recurring lung infections throughout their lives.

Jim suffers frequent pulmonary infections, progressive lung damage and scarring caused by a micro resistant bacteria called MRSA. Cystic fibrosis also impacts the digestive system as well and has caused many hospital ER visits and stays over the past six months . He suffers from excruciating stomach pain due to small bowel obstructions and bleeding in his small bowel and colon 

Even with health insurance, the cost of Jim’s medical regimen remains high. The out of pocket costs related to cystic fibrosis are enormous .  Doctor visits and medication copays, out of pocket maximums, health insurance premiums, and many other hidden costs, and the costs associated with hospitalizations are a part of living with cystic fibrosis. 

Jim is a loving husband to Erica. He enjoys cooking, attending George Mason University and being a healthcare advocate. Jim has made three trips to Capitol Hill to visit with senators and their staff advocating for affordable and accessible healthcare for those suffering from cystic fibrosis and other health conditions 

~ You have no idea, this is the most important moment of my life. I’m so happy my dream of taking a full, deep breath is rapidly coming to fruition. ~ Jim Krause

Doctors recommended Jim use the organization COTA, a 501(c)3 charity. COTA serves as the administrator of the funds, only to be used for transplant and medical costs associated with cystic fibrosis. COTA helps with those costs for the lifetime of the patient.

Jim Krause

Warrenton, VA

Transplant Type: Lung

Transplant Status: Waiting for Transplant

Goal: $55,000.00

Raised: $25,671 of $55,000 goal

Raised by 111 contributors

Recent Contributions

Mary Stearns

November 11, 2025

Kathryn Guy

July 01, 2025

Alison M Fergusson

March 12, 2025

Dave Chase

February 24, 2025

Krishnan Suresh Kumar

February 22, 2025

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Photos

Life Can Be Hard With Cystic Fibrosis

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Updates

Healthcare Advocacy On Capitol Hill

Posted

https://www.facebook.com/share/p/1BZWRWWbYR/ Continue Reading »

Wow, glad that is over…lol

Posted

our story: https://www.wusa9.com/article/news/local/virginia/warrenton-cancer-patient-concerned-about-possible-funding-cuts/65-f1325276-4a62-47fb-9285-a6d707652cbf Never easy being an advocate for healthcare. Susan Continue Reading »

Life Can Be Hard With Cystic Fibrosis

Posted

James Krause

Posted

Life Can Be Hard With Cystic Fibrosis 2/6/2025 My how fast life goes by when you are busy. It has been a little while since I updated this, and... Continue Reading »

Breathe December 2021 Trip To The University Of Maryland Transplant Center

Posted

 December 2021 Trip To The University Of Maryland Transplant Center It was great to meet my new future transplant team. It seems I'm doing well enough to still be on hold... Continue Reading »

Every Breath Gives Hope

Posted

Hope For The New Year 2022 It was a great trip in December to the University Of Maryland Transplant Center. I got to meet some new doctors added... Continue Reading »

Traveling With Cystic Fibrosis

Posted

Tomorrow we will be picking Jim up from INOVA Fairfax Hospital...YAY ! We will leave Fairfax drive to Baltimore , stay the night for an early appointment at... Continue Reading »

Another Hospital Stay

Posted

Jim is in the hospital again getting tuned-up. His four weeks of being home, came to an end Tuesday night. Ajax cried for thirty minutes straight after Jim... Continue Reading »

The Train

Posted

  August 14 , First day of school with students for me. bsk;'Katie went with Ed and Jim to the family transplant class. They took the train to... Continue Reading »

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Our Story

The past six years have been challenging, all COTA funds raised in honor of Jimmy have almost been depleted. The thermometer shown does not reflect the current balance in honor of Jimmy, it shows the amount of funds raised over the past six years. Doctor visits, medication copays, out of pocket maximums, health insurance premiums, and many other hidden costs associated with cystic fibrosis have been assisted with by these...

Continue Reading »

Jim Krause

Warrenton, VA

Transplant Type: Lung

Transplant Status: Waiting for Transplant

Goal: $55,000.00

Raised: $25,671 of $55,000 goal

Raised by 111 contributors

Updates

Healthcare Advocacy On Capitol Hill

Posted

https://www.facebook.com/share/p/1BZWRWWbYR/ Continue Reading »

Wow, glad that is over…lol

Posted

our story: https://www.wusa9.com/article/news/local/virginia/warrenton-cancer-patient-concerned-about-possible-funding-cuts/65-f1325276-4a62-47fb-9285-a6d707652cbf Never easy being an advocate for healthcare. Susan Continue Reading »

Life Can Be Hard With Cystic Fibrosis

Posted

James Krause

Posted

Life Can Be Hard With Cystic Fibrosis 2/6/2025 My how fast life goes by when you are busy. It has been a little while since I updated this, and... Continue Reading »

Breathe December 2021 Trip To The University Of Maryland Transplant Center

Posted

 December 2021 Trip To The University Of Maryland Transplant Center It was great to meet my new future transplant team. It seems I'm doing well enough to still be on hold... Continue Reading »

Every Breath Gives Hope

Posted

Hope For The New Year 2022 It was a great trip in December to the University Of Maryland Transplant Center. I got to meet some new doctors added... Continue Reading »

Traveling With Cystic Fibrosis

Posted

Tomorrow we will be picking Jim up from INOVA Fairfax Hospital...YAY ! We will leave Fairfax drive to Baltimore , stay the night for an early appointment at... Continue Reading »

Another Hospital Stay

Posted

Jim is in the hospital again getting tuned-up. His four weeks of being home, came to an end Tuesday night. Ajax cried for thirty minutes straight after Jim... Continue Reading »

The Train

Posted

  August 14 , First day of school with students for me. bsk;'Katie went with Ed and Jim to the family transplant class. They took the train to... Continue Reading »