Our Story

Norah is our first child, who was healthy and growing well. Until Norah was 2 months old, we noticed that she continued to be jaundice (yellowing of the skin), at that time further evaluation was done and she was diagnosed with biliary atresia. Biliary Atresia a rare and life threatening disease of the liver and bile duct. She then had a emergent surgery to help restore the bile flow on June 2nd. However,...

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Updates

Going Home!

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It is official...We get to bring Norah home today! Praise God! It is so amazing to witness our daughter transformed into a more energetic, cheerful and sweet baby... Continue Reading »

Surgery

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April 16 Thank you everyone for your prayers and support! I am blessed to have a strong and selfless wife who puts our daughter life over hers. Good... Continue Reading »

Updates on Norah

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April 12 Norah got admitted to the ICU on Tuesday with irritability and developed a fever while we were in the ED. They said she has cholangitis (liver... Continue Reading »

Norah’s Tube placement

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We were unable to maintain norah's weight and calories with the current regimen and formula. She was admitted to get a tube placement to help her grow and... Continue Reading »

Norah’s tube placement

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Norah’s Kasai procedure

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