This was the day our world turned upside down. The day my worst fears happened. The day a miracle happened.  So many emotions come up when I think...

It’s Easter Sunday, also the eve of Alek’s 11th birthday. Eleven years ago, it was also Easter Sunday and I was having contractions all day and praying for...

I have to be honest - I didn’t know the exact day post-transplant and had to use Google! Thank goodness for Google! Although, if you are anything like...

We want to extend our heartfelt gratitude to each and every one of you for your incredible support and participation in our Touch-a-Truck event. With over 250 guests and...

Our visit to Minnesota last week was good overall. Alek’s immune system is in a good spot, good enough to start school - with precaution! While I am...

The last month has been full! Full of laughs, cries, fights, snuggles… all of the things that come with family!   Alek is slowly adjusting to life at...

Alek and I have now been home for two weeks. We are all slowly adjusting to the new norm. This transition has not been an easy one on...

On Wednesday, the pathology report from Alek’s colonoscopy came back and the results pointed to GVH, not Crohn’s. Alek’s BMT doctor was not convinced, but continued to consult...

The Good - The preliminary reading of Alek’s MRI was good news. There are no new lesions, previous lesions are not growing, and the “ring of wildfire” is...

Last week Alek’s team decided that a full colonoscopy/endoscopy is needed. This will take place tomorrow, along with his MRI. The results of the scope will determine our...