Update

Just a warning- this post is long but I just wanted to make sure I updated everyone about everythjng! Thank you!!

Hello y’all! I haven’t posted much or even texted much i’ve just been trying to keep my anxiety low waiting for all my tests to come back slowly but surely, so here’s a quick rundown of what life with Allie looks like right now;

 

Friday was my long long day 10-3:30 all at the hospital!

First test was sonogram with my most favorite sonogram tech (we will call him A-man) he’s been doing my sonograms since I was 10! So it’s always super good to see him but he was like “oh my goodness, how are you not just crying right now in pain?” and i was like.. A-man, my dude what do you mean? and he goes “there’s so much gas in your abdomen i can barely see anything” so i’ve been on gas-x 3times a day for 4 days now and not ONE SINGLE FART LOL! it’s rough let me tell ya!

 

The second test was blood and oof my poor lab lady, usually this is the easy one just get some blood and go, but nope. They had to do 13 tubes since they’re doing Allosure again, donor testing, and my regular blood draw and it took 35 minutes and two stabs ???? Poor lab lady and i just hugged after we were both relieved we got it after that long.

 

Test #3 was pee which also you would think ah yes, very easy. But not when you’re in kidney failure, it’s exhausting, i have a really hard time peeing and under pressure I get unbelievably anxious then i push so hard i almost puke. It’s not cute nor easy. But we did that as well.

 

Then we sit and we wait for the doctor, and we ask all the questions, list out all my meds and all my issues going on and move on to the next step.

 

We talked to the doctor he said the Allosure will take about 5 days again, and to see me in a month. Easy right? great so now off we go to test #4(?)

 

Bone density; Let me tell you I love the bone density test because they’re always so shocked, always check my age about 90 times to make sure i am in the correct place, it’s just very entertaining. So last year I fractured my hip and was on crutches for my bone density test and the lady was like “oh no like what are the crutches for?” and me being my fathers daughter (thanks dad) i was like “oh hehehe i’m not actually gonna tell you, tell me what you find and guess what it is”.

I just love watching their faces and their guesses on what’s wrong with my body this time ???? Gotta have a little fun, right?  Well this time they kinda shocked me instead of me shocking them. So they were looking back at last years and comparing and i said “Last years I had a fracture in my femoral head of my hip bone” and they were like okay we will compare. But, if you caught it or not I didn’t tell them which one cause I was like “hehe now they will guess”

This is like my only fun for the year lol!

So when they’re scanning you they have to strap your legs down and when they strapped my right leg down the hip popped making an unbelievably loud clunk and i was like don’t worry it’s okay my hips just clunk. So they strap the other leg into place and the fun begins, their faces. So the machine is going over the left hip and they’re like doing double takes and making sure my age is correct then patting on the machine as if it will change the pictures and I just go “It’s okay yall like really It’s normal i have bad bones” and she’s like hm okay let’s look at the other side…. so they do so and same thing like “pat pat pat” ah yes i am healed thanks to your parting of the machine! Bless you. and both the techs just look at me and the older one says “When are you scheduled to have your hip replacements?” and I laughed i was like haha yeah i’m old we get it and she’s like “no really, both of your hips are fractured” and i just kinda sat up, i looked at the picture, and i was just like, not in shock, not angry, not sad, just kinda…. there. I was just sitting there like “how?” how does one fracture both hips, like i just have no idea. So all I say is with a giggle “Haha! well not right now but I’ll fix them eventually!” as if i even know they were actively there like okay. But I just didn’t believe it, I was like nooo, there’s no way I have an active rib fracture, two fractured hips, i postponed my foot surgery since I was in the hospital, i need a new kidney, I’m nauseous and hurting all the time, I just wanna walk downstairs without almost passing out and you’re here to tell me I have two fractured hips? No. I don’t approve please come back in a few months when I have caught up with life and we can go from there.

Like I just wasn’t even sure of what the heck was going on!

And in the midst of ALL of that going on, the techs walk me to the door, they say thank you and give me my little parking passes and send me on my way. I look at my phone and I have a voicemail from the nurse saying to please call asap it is very important and it’s about my labs. I was like great, okay what else have a fractured in my life, i don’t think we can fracture or break blood work so i’ll just go upstairs and talk to the girl. So i shuffle my way up to the transplant unit and I’m like “Hey hello i got this voicemail like am i gonna be okay or what’s up” and it just really turns out one of my anti-rejection meds the dose was too high and my numbers were like out of the worldly high. and so we made a plan for that but then i have some other numbers that are just unbelievably high which is very rude of them but ya know it’s life. So we’re slowly figuring it out. But after ALL of that, I went home, I took a nap, I had dinner and off to bed we went. I woke up the next morning (Saturday) and i was feeling my usual crummy but maybe a little more and so of course I checked my blood sugar and it was just going wild and crazy high and it was super weird cause my body was acting as if it was crashing but it was actually just SO high so not quite sure what’s going on there but I’m gonna start insulin soon most likely like they did in the hospital so pray for that.

 

So that’s your big update for today, I am fallin’ asleep and ready for bed but as soon as we get rest results from the Allosure testing we will be sharing those details and next steps!! As always, thank you so very much, thank you for the prayers and all! Love each and every one of you!

~Allison

Allie Gregory

Nevada, TX

Transplant Type: Kidney

Transplant Status: Waiting for Transplant

Goal: $50,000.00

Raised: $15,138 of $50,000 goal

Raised by 155 contributors

3 thoughts on “Update

  1. You are amazing! When I think of complaining about my aches and pains, I just think about all of the things you go through! Mine are minimal compared to yours my girl! Praying for you always!
    Xoxo

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