Last year, on September 20th, we were discharged after Bexley had her liver transplant, and today, we are being discharged after another hospital stay! We are leaving with a bile duct drain, BUT today is the first day in her whole life Bexley has had NORMAL liver numbers!! Praise Jesus!! Hallelujah!! I have been praying for this since she was diagnosed with liver disease at just 2 years old. Praise God! Her biopsy results showed bile duct changes consistent with the stricture they are treating with the drain and no rejection!! God is faithful!
We are heading home with new meds and new things to get used to like daily dressing changes, drain flushes, and bag emptying. It will be a new normal and we will find our groove.

Please continue to pray for no infection or complications with the drain in. They said at the first sign of a fever or her feeling unwell we are to get her back to Duke asap. They expect she will need it for at least 4 weeks to a few months. Pray with us that this is a one and done, and when they go back in in 4 weeks, the problem is solved! We are trusting and believing. Man has the Lord moved in a mighty way over and over on this journey, and I am just so incredibly grateful. 🌻

BexleyBrave

Cota.org/cotaforbex