Today was another big day of tests for our girl — including her echo and some new lab results. Her echo showed that her heart is still working incredibly hard. There are areas we’re keeping a close eye on, and the team at Mayo is reviewing everything carefully to guide our next steps.
Her labs showed her hemoglobin is still low (8.7) and her reticulocyte hemoglobin (18.8) means her bone marrow isn’t quite making strong new red blood cells yet. She’s also tested positive for RSV and adenovirus, which explains why she’s been so pale, tired, and just not herself these last few days. I am not sure how long we will be restricted/isolated to her room, but until symptoms go away, and/or she has negative tests, we will have to make do.
We’re so proud of how brave she continues to be through all of this even when she’s feeling crummy and just wants to rest.
Thank you to everyone who continues to pray for and rally around Evelyn. Your messages, love, and light mean more than you know. Please keep her in your hearts as we wait for her body (and her little heart) to get the strength it needs again.
How You Can Help
Whether you choose to wear a “Hearts for Evelyn” shirt or make a direct contribution to COTA for Evelyn’s Heart, you are joining a community that will help Evelyn for her lifetime.