We're quickly approaching the middle of summer, and I can't help but grieve. Evelyn has now been inpatient for almost 10 months. In just 80 days, she'll reach...

Today we kept things simple. We enjoyed some special treats, decorated cupcakes that Mom baked, and Evelyn got to do a baking soda and vinegar experiment that created...

A little transplant update on Evelyn. As part of her routine monitoring while she waits for her new heart, the transplant team checks her antibody levels every two...

Evelyn is officially OFF her Milrinone drip after 9 months (276 days)! Milrinone is a medication that helps the heart pump more effectively while also relaxing blood vessels,...

After 42 days, Evelyn finally got to go outside for some fresh air. One of the challenges with the Berlin Heart is that it can only be unplugged...

Big milestone for Evelyn today, she's officially NG tube free! She was nervous leading up to having it pulled, but she was incredibly brave and handled it like...

Friday's procedure went smoothly, and Evelyn is adjusting well to her new Berlin Heart system. One challenge is that the machine can only be unplugged for about 30...

Evelyn had another good day today. All of the daily PT and movement is really paying off. We spent part of the day making Father's Day crafts, and...

Evelyn had another really good day today. She left her room for therapy, walked around the unit, and only needed a few short breaks in her wheelchair. Watching...

With everything happening over the last few days, I held off on posting an update. Today was a big day for Evelyn. First, she had her arterial line...