There have been some BIG updates with Evelyn’s transplant journey, so I wanted to try to explain where we are right now in a way that makes sense. ...

I still can't believe those words are real. When Evelyn was listed for a heart transplant, we were told to expect a 6–12 month wait. Now, her cardiologists...

One thing this journey has taught me is to truly live in every small victory and every little moment. Today, we went outside and soaked up the beautiful...

Evelyn has had a really good few days! Today she got to go down to the magic show and see her friend Claire. They were even able to...

No real updates on our end. We're just trying to fill our days with as much entertainment, laughter, and normalcy that we can.  We've been leaning a lot...

We're quickly approaching the middle of summer, and I can't help but grieve. Evelyn has now been inpatient for almost 10 months. In just 80 days, she'll reach...

Today we kept things simple. We enjoyed some special treats, decorated cupcakes that Mom baked, and Evelyn got to do a baking soda and vinegar experiment that created...

A little transplant update on Evelyn. As part of her routine monitoring while she waits for her new heart, the transplant team checks her antibody levels every two...

Evelyn is officially OFF her Milrinone drip after 9 months (276 days)! Milrinone is a medication that helps the heart pump more effectively while also relaxing blood vessels,...

After 42 days, Evelyn finally got to go outside for some fresh air. One of the challenges with the Berlin Heart is that it can only be unplugged...