One year. 365 days. Today marks one year since our world changed again and Evelyn became a hospital kid.And what makes this day especially emotional is remembering how...

Today was a routine PICC change day for Evelyn, but we decided to reintroduce sedation for her dressing changes because of the anxiety and some of the pain...

Another Fall is here again- not much has changed in Evelyn’s world. We are still living one day at a time. Evelyn was able to get outside this...

Evelyn has had quite the busy week so far thanks to Child Life at the Mayo! Yesterday, she got to meet Kayla McBride from the Minnesota Lynx and...

A HUGE update for Evelyn!! One of the biggest stressors we’ve been carrying since June has finally changed. Evelyn’s antibodies have come down enough that she has officially...

This picture was shortly after Evelyn’s Berlin dressing change the other day. Dressing changes are usually somewhat painful for her, especially because her skin is so sensitive. But...

Today was a pretty big day for our girl Evelyn’s first day of first grade! Her first day looked a little different than most kids’, because she’s starting...

There is so much importance in having siblings be a part of the support system during a long-term hospital stay. For Evelyn, Raylan has been a huge part...

A couple of weeks ago, we were approached by staff and asked if we would be interested in having Evelyn participate in a photo shoot centered around her...

School is only a little over two weeks away, and lately I've been grieving the reality that Evelyn won't be starting 1st grade with the rest of her...