Today was another big day of tests for our girl — including her echo and some new lab results. Her echo showed that her heart is still working...

Thursday was transfer day. We officially made the move to Mayo Clinic. It was bittersweet saying goodbye to some of Evelyn’s favorite nurses and of course, “The Dude,”...

Today was a busy day. We’re all packed up except for the essentials, stuffies, blankies, and snacks. We were given the final okay from Mayo to transfer from...

What a busy week! We’re all packed up except for the essentials, stuffies, blankies, and snacks. We were given the final okay from the Mayo Clinic to transfer,...

After a lot of thought and prayer, we’ve made the decision to move Evelyn’s care to Mayo Clinic. We did not make this decision lightly, knowing the logistics...

Today was a good day. Evelyn sat outside with me for a little while, all bundled up in her coat, as we watched the sun go down. It’s...

Wow! The turnout for Evelyn’s COTA fundraiser was absolutely incredible, truly beyond anything we could have imagined. I wish we had enough time to thank each and every...

During this long hospitalization, Evelyn has had the opportunity to take part in Little Wishes. Little Wishes grants the immediate and ongoing wishes of chronically and critically ill...

Evelyn and Raylan had such a fun afternoon at the floor Valentine’s Day party, playing games, dancing, and doing crafts! She also received the sweetest mini Valentine’s Day...

Evelyn had another heart offer early last week. This time, it went to the second person it was offered to. We were next in line, and her team...