Since May is Cystic Fibrosis Awareness month, I wanted to give an update on my current life and status waiting for lungs, liver, and kidney transplants.

It’s officially been just over a year now on the list and, while I am in about the highest percent “score” for need, I’m still patiently waiting. I’m still in dialysis for 4 hours three days a week. I’m still supporting myself through COTA funds raised in my honor thanks to so many people. Because I’m still having to live in Pittsburgh, not working, and needing a support person 24/7 (selflessly provided through my Aunt Pam Simboli, my Mom Denise Lyons Hare, and my Dad Jim Fessler), I’ve used about 2/3 of the funds. I honestly don’t know how to express my deepest humbling appreciation for all the people who have, and continue to, rally around me through this.

My doctors are thrilled with where my health is in preparedness for a strong transplant recovery, and they are just doing everything they can to make sure my call comes as soon as possible. As I’ve gotten stronger, I’ve been doing a lot more. I’m walking a ton! We go to the movies (Project Hail Mary was AMAZING and really did the book justice!), shopping for my ever changing body’s needs, and we check out new places in the city. Dad and I went to the Flight 93 9/11 Memorial, and we’ve gone to a few Pirates games. I’m meeting up with old friends (love you Ryan Pickering) and even making new ones.

It’s finally starting to feel like my life isn’t just on pause anymore. I’m not JUST waiting. I’m just living life a little differently.