Our Story
Isaac was born with a rare and complex congenital heart defect. He is considered “single ventricle,” which means instead of having two ventricles (one that pumps blood to the lungs and one that pumps blood to the body) he only has one. Babies born with this condition often have a series of 3 palliative surgeries: one at birth, a second one between 6 months and 2 years and another between...
Continue Reading »Transplant Status: Waiting for Transplant
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Updates
TRANSPLANT DAY HAS ARRIVED!!
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In case you missed Kasie's Facebook post this morning, Isaac was matched with a heart last night and is currently in the hospital awaiting his transplant! He is... Continue Reading »
Where is Isaac on the list?
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The answer is, "Your guess is as good as mine!" But it would be fun to give a little information about how the transplant list works, for those... Continue Reading »
Make-A-Wish granted!
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Last week Isaac's Make-A-Wish was granted! He had been asking about it a lot lately, and it came at the perfect time. Larry and I knew it was... Continue Reading »
Top Golf for Isaac!
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What a fantastic day of fun and fellowship! Today, over 40 people came out to support Isaac and enjoyed 3 hours of Top Golf, door prizes, a yummy... Continue Reading »
6 months
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At heart clinic last week, we learned Isaac's heart condition is unchanged, and all of his tests, labs and "numbers" look amazing!! We still marvel at how good... Continue Reading »
Dinner Nights
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We have 3 dinner nights coming up over the next few months. It's a chance for you to eat at some of your favorite restaurants while having a... Continue Reading »
5 months
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It's been a few weeks since I've posted so I wanted to hop out and give a quick update on Isaac. He has been listed for 5 months... Continue Reading »
Happy Birthday, Isaac!
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Isaac celebrated another birthday yesterday by go-karting and ax-throwing with some buddies. We capped off the night with dinner at his favorite Chinese restaurant, Jade Palace. It's also... Continue Reading »
Dropping Meds!
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Lots of updates on Isaac today, including med changes, an upcoming procedure and Make-a-Wish! At Isaac's last heart clinic they discovered he was a little "dry," which can... Continue Reading »