The day started with a bit of a letdown. Jake had yet another X-ray, which is typically done in the room using a portable machine while he is...

Jake’s victories are being measured in liters, meters and as of recently, lollipops. While we are all incredibly anxious to be back home under one roof, we are...

Today, as the world celebrates the birth of the Savior, our family is reflecting on the incredible people who have carried us to this moment. While our Christmas...

Last night, Jake was able to have three of his five chest tubes removed! His surgeon reviewed the morning X-ray and is very happy with how things are...

We are continuing to work through the intricacies of Jake’s lung recovery today with a focus on patience and precision. While we aren't quite at the "graduation" point...

The bedside procedure from yesterday unfortunately did not provide the resolution we were looking for. This morning’s X-ray showed only marginal improvement on the right side and a...

On Friday, we were on a mountaintop. Jake was progressing so fast. He was up, walking, and breathing so well that he was back on a standard nasal...

Today was not the easiest day. It’s hard to watch someone you love fight this hard for this long without feeling a little worn down by the battle....

Today marks a milestone that feels like a lifetime and yet has been full of miracles. Five weeks ago today, we were admitted into the hospital. While the...

What a difference a day makes! We are ecstatic over the results from yesterday's Cardiac Cath.The procedure went very well, and the doctor was able to go through...