GREAT NEWS and recap of events!

02/11/2019  Hi Everyone, We got some exciting news today and as I was thinking about how I would share this with everyone I started thinking about what we have gone through. I came to realize it has been almost two years since Jades original diagnosis. I decided to recap the last couple of years before sharing the announcement.

May 2017 – Diagnosed kidney disease caused by Lupus (SLE)

June 2017 – Started Chemotherapy for Lupus and 3 times a week infusion therapy to attempt to get kidneys functioning

August 2017 – Infusion therapy did not work to get kidneys back to functioning on their own so dialysis was started three days a week

August 2017- June 2018 Continuous dialysis, adjusting of medications and diet, dialysis went up to 4 days a week but after fine tuning of meds and diet was able to go back down to three days, started talking about transplant options

July 2018 – Added to transplant waiting list August 2018 – Developed SMA due to rapid weight loss, was taken off transplant list

September 2018 – December 2018 – Went from eating food to feeding tube only, went through several types of feeding tubes, decided to get surgery for g-tube, after g-tube weight gain started

January 2019 – Started slowly adding regular foods back to diet

February 2019 – g-tube changed to button, back to regular (still kidney safe) diet And now for the news:

February 12th 2019 – BACK ON TRANSPLANT LIST!!!!!  In closing I want to say thank you again to everyone who is continuously supporting Jade and our family. Words cannot express how grateful we are.

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