We think his belly may be getting just a tiny bit bigger again, so we’re keeping a close eye on it. If it continues, the next step would be adding Lasix to help manage the fluid.

We also cancelled the swallow study that had been scheduled while Jaime was sick. He needs to be able to swallow at least an ounce for the study, and at that point he was completely refusing the bottle. But we did get a little win this week…he had some success swallowing baby cereal during feeding therapy! 🙌

He gets his next round of vaccines Friday, chickenpox and MMR, as we keep working through the accelerated vaccine schedule ahead of transplant. He’s also doing pretty well with his 30 kcal diet, which we’re very thankful for.

And personality-wise? He’s keeping everyone entertained or at least awake. Bedtime has apparently become the perfect time for late-night dance parties and very important chat sessions because sleep is clearly overrated when you have things to say.