Overall, today’s appointment went pretty well. Jaime is down in weight, but a lot of that is because he has lost so much extra fluid since starting Lasix....

Jaime is resting up today because tomorrow we make the trek back to Riley. We’ll be seeing his liver team and checking in on how things are going,...

A little Jaime update. The Lasix really seems to be helping with his ascites! His belly is looking much better, and so far it seems to be helping...

What exactly is biliary atresia, and where is Jaime now? We talk a lot about Jaime’s liver, appointments, fluid, feeding therapy and transplant, but we know not everyone...

Homeward bound! Jaime has been fever-free for almost 24 hours, his bloodwork showed no signs of infection, and the team didn’t feel he needed another paracentesis this time....

Today has been a rough one for Jaime. He didn’t have a very good night and has still been pretty lethargic today. He’s been getting IV fluids and...

His belly is starting to hold onto some fluid again. It’s definitely not as bad as it was before, but enough that his team wants to try to...

What a difference a few months can make. Looking back at Jaime shortly after his Kasai surgery in April and seeing him now is a reminder of just...

We think his belly may be getting just a tiny bit bigger again, so we’re keeping a close eye on it. If it continues, the next step would...

Jaime had a liver appointment yesterday, and overall it was a pretty uneventful visit…which we’ll take! His labs were drawn to check his electrolytes, and everything looked good....