If you believe in Christmas miracles this little guy can sure use one. With the HLHS the left side of his heart never developed and now the right...

Jayce has a stomach bug today. He has fever, stomach symptoms, and high heart rate. They gave him meds and now he is resting peacefully. On the progression...

We just talked to the Doctors and we will be going onto the Transplant list tomorrow with a 1A status. We need to improve our hydration and caloric...

We are hiding from the nurses so they can't take him to cath Hiding from nurses

Tomorrow is cath day we will find out how his heart is working and the pressures inside. This will be important to be sure he is a candidate...

I'm thankful for my support system. I'm thankful for the people around me and the kind words I've been told. But today is hard. My family is not...

Tomorrow, they are going to put him in the ICU to start the milrinone to help him get ready for the PICC line. She said a couple days...