Our Story
Mackenzie (Kenzie) Kokoski was diagnosed with Cystic Fibrosis at birth. Cystic Fibrosis (CF) is a progressive, genetic disease that affects the entire body; primarily the lungs and digestive system. A defective gene disables the sodium chloride channel from working properly which causes a thick sticky mucus in the organs. This results in inflammation and chronic infections which eventually cause extensive scarring in the lungs and a double lung transplant is needed...
Continue Reading »Mackenze Kokoski
Lorain, OH
Transplant Type: Lung
Transplant Status: Transplanted
Goal: $25,000.00
Raised: $16,971 of $25,000 goal
Raised by 145 contributors
Updates
4 1/2 months post transplant
Posted
Kenzie is 4 1/2 months post transplant. She had her third Bronchoscopy in January and everything looked good. In early February she had an endoscopy to measure acid... Continue Reading »
COTA for Kenzie Benefit Date
Posted
The COTA for Kenzie benefit will be Saturday, March 21,2020 at the Amvets in Elyria, OH. Stay tuned for much more details, but save the date! :) Continue Reading »
Bronchoscopy #2
Posted
Kenzie is 6 weeks post transplant and she had her second bronchoscopy a few days ago. She gets these done to check for signs of infection or rejection.... Continue Reading »
Post Transplant Bronchoscopy
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Kenzie had her second visit at the Cleveland Clinic (3 weeks post transplant). It was a long day (6 am - 7pm) full of lab work, chest x-ray,... Continue Reading »
Kenzie gets to go home!!!!
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Kenzie was discharged from the Cleveland Clinic today at 3 pm!!!!!! She is such a tough human as she walked on her own on room air only 12... Continue Reading »
Going home tomorrow!
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Kenzie has done such a remarkable job with her recovery. She has only 2 chest tubes left and has been breathing on ROOM AIR (instead of oxygen)!!!!!! Woo... Continue Reading »
Good days and Bad days
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Kenzie had a really good day on Saturday, but today has been tough. She was fighting a migraine along with the pain. They pulled one more chest tube... Continue Reading »
Kenzie is immunocompromised
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Hey everyone! Kenzie is doing great despite the pain (still has 4 chest tubes in) and is starting to get her appetite back. We appreciate all the love... Continue Reading »
Kenzie out of ICU!
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Kenzie is having an eventful day! She was up early after getting a couple hours of good sleep last night! Transplant team/drs/nurses/physical therapy/respiratory therapy/endocrine/neurology/social work etc everyone’s been... Continue Reading »