Our Story
Langdon’s journey begins very shortly after he was born. He had an ultrasound after he was born, and we were immediately told of his suspected diagnosis of ARPKD (Auto Recessive Polycystic Kidney Disease). His kidneys were both 3 times the normal size and full of cysts, and his liver was also enlarged and had cysts in one quadrant. He spent 24 hours in the NICU for observation because of elevated...
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