Post-transplant life has been a life of renewal, second chances and continued great appreciation for everyday life. What never seems to go away is continuously trying to break down the walls of daily transplant and cystic fibrosis challenges. These continue to be (and will always be) physical, mental and financial. The need for financial support never stops. The first $110+K raised in the initial campaign ran out January 2018; it took only four and a half years to go through it. 

Some people wonder if I am “cured”, if I will “always take those” medications, if I will always have to battle this. No, I am not “cured”. There is no cure for CF; there is nothing to “cure” in transplantation; only nurture and maintain. Yes, I will always have to take those medications; they are what maintain; and I will always battle this – back to there are no cures.

Cystic Fibrosis (and transplantation) is for life. I only feel luckier that as I live each day, I can say I have beat this nasty friend for yet another day.