As many of you know, Lucy was born with a rare liver disease, biliary atresia, and as a result, her bile ducts never formed properly. She had surgery in June to try to prolong the life of her native liver. Unfortunately, her disease progressed faster than we anticipated and Lucy needs a new liver.
We are scared, but also very hopeful. We feel fortunate to live in a city where we have access to some of the best pediatric liver specialists and transplant surgeons in the world. We have tremendous confidence in our team, and we believe wholeheartedly they are doing everything in their power to ensure a positive outcome for Lucy. Although it is difficult to even think about transplant on such a tiny baby, it is heartening for us to know that once she has a transplant, she will no longer have the liver disease.
We are also thankful for the wonderful support from family and friends during this time. We know many of you would like to be kept updated, and therefore we have created a Facebook page call “We Love Lucy” that we will use to post updates about Lucy. Please feel free to “like” that page if you would like more “in depth coverage” about Lucy’s journey.
In the meantime, we are taking this time to enjoy every minute with our little superhero. One thing we have learned for sure is that this girl sure is a fighter. Lucy is the bravest person I have ever met, and despite everything she has gone through, she spends most of her time with a huge grin on her face. We couldn’t be luckier that we get to be parents to the most amazing and fierce little girl.
The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.
Eileen is my cousin. Our mother’s were sisters. I’m the youngest of that generation. We will keep you in our prayers.