Our Story
As some of you may know, in March of this year, Ron & Lexi’s 3-month-old son Reese was diagnosed with biliary atresia. Biliary atresia (BA) is a rare disease in infants in which the bile ducts outside and inside the liver are scarred and blocked. Bile can’t flow into the intestine, so bile builds up in the liver and damages it. The damage leads to scarring, loss of liver tissue...
Continue Reading »Reese Volle
Lincoln, IL
Transplant Type: Liver
Transplant Status: Transplanted
Goal: $50,000.00
Raised: $43,151 of $50,000 goal
Raised by 145 contributors
Updates
Splish splash Reese is ready for a BATH!
Posted
On Thursday the 11th, Reese had his follow-up appointment for his drain. His doctors decided that everything looked great and after 12 very long weeks the drain is... Continue Reading »
Just can’t catch a break..
Posted
While Reese was in the hospital in late January due to a virus, his EBV level came back extremely high which was concerning because this can indicate something... Continue Reading »
Rough start to 2025..
Posted
Tuesday evening, Reese had a light colored poop which immediately concerned Mom & Dad. He had a terrible night sleep so Lexi, Ron, and Reese packed up &... Continue Reading »
Thankful in November!
Posted
Praise be to God that we are counting blessings for so many reasons this year! Obviously Reese’s diagnosis was devastating and terrifying bringing all kinds of negative emotions... Continue Reading »
Oh the joy of being home!
Posted
Reese is enjoying the freedom of rolling around his room, and sleeping in our own beds without interruptions for vitals!!!! We’ve taken advantage of the beautiful weather by... Continue Reading »
We are HOME!
Posted
The day we've been praying for!!! 50 days after liver transplant surgery and then the agony of his body rejecting it, we're going HOME!!! Of course the thymoglobulin... Continue Reading »
9-18-24 Not the update we hoped for..
Posted
Unfortunately, Reese's lab work from today showed that this round of IV steroids have not worked. His numbers have gone up instead of down like we had hoped... Continue Reading »
Post-Transplant: Month Two
Posted
Another bump in the road..
Posted
Reese went in for his routine lab work 9/12 and the results showed a significant jump in numbers. We were admitted again that night and a biopsy was... Continue Reading »