Our Story
As some of you may know, in March of this year, Ron & Lexi’s 3-month-old son Reese was diagnosed with biliary atresia. Biliary atresia (BA) is a rare disease in infants in which the bile ducts outside and inside the liver are scarred and blocked. Bile can’t flow into the intestine, so bile builds up in the liver and damages it. The damage leads to scarring, loss of liver tissue...
Continue Reading »Reese Volle
Lincoln, IL
Transplant Type: Liver
Transplant Status: Transplanted
Goal: $50,000.00
Raised: $33,094 of $50,000 goal
Raised by 129 contributors
Updates
Thankful in November!
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Praise be to God that we are counting blessings for so many reasons this year! Obviously Reese’s diagnosis was devastating and terrifying bringing all kinds of negative emotions... Continue Reading »
Oh the joy of being home!
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Reese is enjoying the freedom of rolling around his room, and sleeping in our own beds without interruptions for vitals!!!! We’ve taken advantage of the beautiful weather by... Continue Reading »
We are HOME!
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The day we've been praying for!!! 50 days after liver transplant surgery and then the agony of his body rejecting it, we're going HOME!!! Of course the thymoglobulin... Continue Reading »
9-18-24 Not the update we hoped for..
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Unfortunately, Reese's lab work from today showed that this round of IV steroids have not worked. His numbers have gone up instead of down like we had hoped... Continue Reading »
Post-Transplant: Month Two
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Another bump in the road..
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Reese went in for his routine lab work 9/12 and the results showed a significant jump in numbers. We were admitted again that night and a biopsy was... Continue Reading »
One month post-op today!!
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The steroid IV worked! His liver enzymes were trending down well enough that we were discharged from the hospital yesterday! And look... no NG tube!!! Because he is... Continue Reading »
Post-Transplant: Month One
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9-5-24 8 months old came with a setback..
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We're sad to report a big bump in Reese's journey this week. The blood work results on Tuesday 9/3 were pointing towards possible rejection so he was readmitted... Continue Reading »