Happy Heart Month

This is our very first year as a family even realizing that February is Heart Month — and it’s already going to be such a special one for us. Not only is it a month dedicated to heart warriors like Sabrina, but it’s also her birthday month

This picture pretty much sums up life lately. We are finally over RSV as a household (praise ) and slowly settling into what might be our new normal. We still have twice-weekly home nurse visits and lots of appointments, but Sabrina has had follow-ups since being sick and RSV did NOT affect her heart function at all — a huge win Her heart looks exactly the same as it did when she left the hospital, and we’re so encouraged by that

We’ve gotten used to the medication schedule and she’s even been able to reduce one of her meds (not the daily amount, just how many times a day), which we’re trialing now She had an echocardiogram last Friday and her heart function is around 28%, which is where it’s been for months — that’s Sabrina’s normal For context, a healthy heart is usually between 55–70%, so we’re still low, but she is doing really well right now

Most of all, she’s absolutely loving being home And her big brother is THRILLED to have his sister back — always first in line for hugs, kisses, and playtime

Right now we’re in a gray season on the 1B transplant waiting list The timeline is hard and uncertain, so our hope is simply to keep Sabrina stable for a long time and trust that the perfect heart will come at the perfect time

So we’re choosing to focus on the good — and right now, this is it – Sitting in our messy living room with our two kids, doing nothing but playing on a blanket together

It’s everything.