There has been a lot happening behind the scenes lately. We recently sought a second opinion from Stanford Children’s because, as long as there is a possibility that...

Last night was one of those reminders of just how quickly things can change around here.I was sitting on the floor playing with Sabrina, watching her happily scoot...

One year ago today, Sabrina was approved for the heart transplant list. A whole year of waiting for something we desperately want her to never need. That’s the...

It’s been a little while since we’ve shared a big update because we’ve been living in the in-between. It’s been about six weeks since Sabrina had her G-tube...

One year ago today, our illusion shattered. A year ago, we thought we were taking our baby to another pediatrician appointment to talk about acid reflux or maybe...

They let us out early! We are home. Sabrina did great, and now it’s time to rest, heal, and find our new normal… again. And while we’re getting...

Sabrina is out of surgery, and her G-tube has been placed successfully. She did so well, and we are incredibly proud of our girl. We have at least...

This weekend reminded us of something we’ll never forget: WE ARE NOT DOING THIS ALONE. When we started planning this rummage sale fundraiser, we hoped it would allow...

Yesterday Sabrina had her heart failure follow-up appointment. The biggest news is that she continues to grow and gain weight. At yesterday’s appointment she weighed well over 19...

We wanted to share a little update on Sabrina. Overall, things continue to look stable, which is exactly what we’re hoping for right now. Her heart function is...