First of all I can't begin to thank everyone for all of the prayers, texts, messages and care packages. There is no doubt they are working. We have...

What a whirlwind the last three weeks have been for everyone! I have updated Facebook posts from time to time b/c it is easier being Mobile friendly.  This...

Yesterday we moved from the ICU to the Endocrinology floor. It was a big day for scarlett. She had more meds moved off her central line and transitioned...

I have been inconsistent in posting updates simply because every hour has been different.The days are both long and fast and a blureI don't want to come across...

I mostly posted on FB and Instagram yesterday as it was easier to post from a mobile device. My Insta handle is @amp0428 if you are only on...

We arrived in Cincy Tuesdsay and just in time to avoid the bad weather. We have had a full day of testing and prepping for her Surgery tomorrow.Today...

The 8 hour drive home after surgery was a little much and she came home feeling pretty rough. She slept 11 hours and woke not feeling great at...

This girl continues to exceed all expectations! Yesterday she came out of surgery a little groggy. When I asked how she was feeling she said "I am excited,...