They say ‘no news is good news’ and sometimes that is true. Other times, as has been our experience, the whiplash from good news to bad news is...

Seven weeks post-transplant tomorrow with 75% lung function!!

Life is hard. Chronic illness is hard. CF is hard. Transplants are really hard. The treatments. The doctor appointments. The medications. The inconsistency. The fear. The hope. The...

Ok, so it isn’t exactly my birthday, but I did give birth to the birthday boy (David -22), and so I am going to claim this one. Drumroll...

When Erin was feeling defeated prior to transplant, and her lung function dropped into the 7-9% range, or her weight dipped down another 1/2 pound, we would remind...

Erin has grabbed ahold of this phrase and run with it, surpassing not only the doctors' expectations and predictions, but even her own. Friday she was officially discharged...

Here are the top 10 updates on Day 10 post-surgery1) The entire family was together today. The kids hung out a little, picked on mom, ate some pizza,...

As Alicia Keys would say, "This girl is on fire!" Erin began her Monday morning with a walk of 125 ft at 4:30 in the morning, RT at...

It's funny how you think some things you will never forget, those BIG moments in your life that you swear you will remember every detail. Well, let's just...

She is a rockstar if there ever was one. The surgeon today said that although her surgery was challenging, it felt more like a first transplant than a...