Our Story
July 2024 Just eight months ago, Erin looked the best she had in her entire life. Despite post-transplant challenges of diabetes, migraines and chronic GI issues, her lung function would hit an all-time high of 95%! She was studying photography, had a boyfriend, and moved out on her own. Unfortunately, Erin began suffering chronic rejection at the end of April and her lung function has rapidly decreased below 20%. We now find ourselves starting the journey towards a second double lung transplant. We couldn’t endure this journey without you!
February 5, 2017 – Erin had her transplant surgery today. Keep the prayers coming and please see the blog posts for further details. To get to the blog please click on the “Blog” link at the top of the page. Thanks to everyone for your support of Erin and her whole family.
Erin Culbertson, daughter of Paul and Karla Culbertson of Green Bay, was born in 2001 and was diagnosed with Cystic Fibrosis. Due to this disease, Erin’s lung function was severely affected and doctors recommended a double lung transplant to help prolong her life. Erin recently had her double lung transplant surgery under the care of the doctors at St. Louis Children’s Hospital.
With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. In Green Bay, volunteers are raising an estimated $50,000 for COTA in honor of Erin.
Facebook Page. Please click the link to visit the COTA for Erin C. — “Carin ‘4 Erin” Page.
Please post pictures, videos and notes!

Erin Culbertson
Green Bay, WI
Transplant Type: Lung
Transplant Status: Transplanted
Goal: $75,000.00
Raised: $80,004 of $75,000 goal
Raised by 199 contributors
Updates
One breath at a time
Posted
They say ‘no news is good news’ and sometimes that is true. Other times, as has been our experience, the whiplash from good news to bad news is... Continue Reading »
WE ARE HOME!!!
Posted
Seven weeks post-transplant tomorrow with 75% lung function!! Continue Reading »
Why the silence?
Posted
Life is hard. Chronic illness is hard. CF is hard. Transplants are really hard. The treatments. The doctor appointments. The medications. The inconsistency. The fear. The hope. The... Continue Reading »
Best birthday gift ever!
Posted
Ok, so it isn’t exactly my birthday, but I did give birth to the birthday boy (David -22), and so I am going to claim this one. Drumroll... Continue Reading »
It’s just a number
Posted
When Erin was feeling defeated prior to transplant, and her lung function dropped into the 7-9% range, or her weight dipped down another 1/2 pound, we would remind... Continue Reading »
Inhale the Future
Posted
Erin has grabbed ahold of this phrase and run with it, surpassing not only the doctors' expectations and predictions, but even her own. Friday she was officially discharged... Continue Reading »
TOP 10
Posted
Here are the top 10 updates on Day 10 post-surgery1) The entire family was together today. The kids hung out a little, picked on mom, ate some pizza,... Continue Reading »
Was there ever any doubt?!
Posted
As Alicia Keys would say, "This girl is on fire!" Erin began her Monday morning with a walk of 125 ft at 4:30 in the morning, RT at... Continue Reading »
Retrospect
Posted
It's funny how you think some things you will never forget, those BIG moments in your life that you swear you will remember every detail. Well, let's just... Continue Reading »
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Our Story
July 2024 Just eight months ago, Erin looked the best she had in her entire life. Despite post-transplant challenges of diabetes, migraines and chronic GI issues, her lung function would hit an all-time high of 95%! She was studying photography, had a boyfriend, and moved out on her own. Unfortunately, Erin began suffering chronic rejection at the end of April and her lung function has rapidly decreased below 20%. We...
Continue Reading »Erin Culbertson
Green Bay, WI
Transplant Type: Lung
Transplant Status: Transplanted
Goal: $75,000.00
Raised: $80,004 of $75,000 goal
Raised by 199 contributors
Updates
One breath at a time
Posted
They say ‘no news is good news’ and sometimes that is true. Other times, as has been our experience, the whiplash from good news to bad news is... Continue Reading »
WE ARE HOME!!!
Posted
Seven weeks post-transplant tomorrow with 75% lung function!! Continue Reading »
Why the silence?
Posted
Life is hard. Chronic illness is hard. CF is hard. Transplants are really hard. The treatments. The doctor appointments. The medications. The inconsistency. The fear. The hope. The... Continue Reading »
Best birthday gift ever!
Posted
Ok, so it isn’t exactly my birthday, but I did give birth to the birthday boy (David -22), and so I am going to claim this one. Drumroll... Continue Reading »
It’s just a number
Posted
When Erin was feeling defeated prior to transplant, and her lung function dropped into the 7-9% range, or her weight dipped down another 1/2 pound, we would remind... Continue Reading »
Inhale the Future
Posted
Erin has grabbed ahold of this phrase and run with it, surpassing not only the doctors' expectations and predictions, but even her own. Friday she was officially discharged... Continue Reading »
TOP 10
Posted
Here are the top 10 updates on Day 10 post-surgery1) The entire family was together today. The kids hung out a little, picked on mom, ate some pizza,... Continue Reading »
Was there ever any doubt?!
Posted
As Alicia Keys would say, "This girl is on fire!" Erin began her Monday morning with a walk of 125 ft at 4:30 in the morning, RT at... Continue Reading »
Retrospect
Posted
It's funny how you think some things you will never forget, those BIG moments in your life that you swear you will remember every detail. Well, let's just... Continue Reading »