Update from the Ham's on day 1It has been a day with ups and downs. The medical team is addressing an antibiotic-resistant bacteria, while her new heart continues...

Kya's transplant surgery is complete. All good so far. We are waiting to see her although she won't be awake for several hours. Doctors said to expect a...

Our girl has been offered a heart. It’s hard to put language around something this sacred. We are overwhelmed with relief and gratitude, and at the very same...

Medical Update from Mom (Angelia)  Hurry Up and Wait Kya and I (Angelia) recently spent four days at Vanderbilt for heart transplant evaluation. Like Eli’s, it involved about a dozen...

Ever feel like you’ve been shaken up and tossed out? You know that feeling when you step off a Tilt-A-Whirl ride at the fair - disoriented, a little...

Q: What are your first memories of the impact of being diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)? I remember realizing “I can’t do ‘the things’, my passions.”...