Our Story
Norah is our first child, who was healthy and growing well. Until Norah was 2 months old, we noticed that she continued to be jaundice (yellowing of the skin), at that time further evaluation was done and she was diagnosed with biliary atresia. Biliary Atresia a rare and life threatening disease of the liver and bile duct. She then had a emergent surgery to help restore the bile flow on June 2nd. However, the surgery was deemed unsuccessful. We are blessed that she has been doing good despite having persistent jaundice, large liver, poor weight gain and constant itching. The best chance Norah has for a normal life is through a liver transplant.
On November 14th, Norah was placed on the transplant list. 100% of funds raised for COTA (Children’s Organ Transplant Association) in honor of Norah will assist with transplant-related expenses — such as unforeseen hospitalizations, surgeries, and procedures. COTA provides support to families and patients for a lifetime. As we await for a perfect match, we would like to ask that you keep Norah in your prayers.
We want to thank every one for your prayers toward Norah’s health.
“For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future.” – Jeremiah 29:11
More information: The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.
Norah Nguyen
Lilburn, GA
Transplant Type: Liver
Transplant Status: Transplanted
Goal: $100,000.00
Raised: $64,798 of $100,000 goal
Raised by 32 contributors
Updates
Going Home!
Posted
It is official...We get to bring Norah home today! Praise God! It is so amazing to witness our daughter transformed into a more energetic, cheerful and sweet baby... Continue Reading »
Surgery
Posted
April 16 Thank you everyone for your prayers and support! I am blessed to have a strong and selfless wife who puts our daughter life over hers. Good... Continue Reading »
Updates on Norah
Posted
April 12 Norah got admitted to the ICU on Tuesday with irritability and developed a fever while we were in the ED. They said she has cholangitis (liver... Continue Reading »
Norah’s Tube placement
Posted
We were unable to maintain norah's weight and calories with the current regimen and formula. She was admitted to get a tube placement to help her grow and... Continue Reading »
Norah’s tube placement
Posted
Norah’s Kasai procedure
Posted
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Our Story
Norah is our first child, who was healthy and growing well. Until Norah was 2 months old, we noticed that she continued to be jaundice (yellowing of the skin), at that time further evaluation was done and she was diagnosed with biliary atresia. Biliary Atresia a rare and life threatening disease of the liver and bile duct. She then had a emergent surgery to help restore the bile flow on June 2nd. However,...
Continue Reading »Norah Nguyen
Lilburn, GA
Transplant Type: Liver
Transplant Status: Transplanted
Goal: $100,000.00
Raised: $64,798 of $100,000 goal
Raised by 32 contributors
Updates
Going Home!
Posted
It is official...We get to bring Norah home today! Praise God! It is so amazing to witness our daughter transformed into a more energetic, cheerful and sweet baby... Continue Reading »
Surgery
Posted
April 16 Thank you everyone for your prayers and support! I am blessed to have a strong and selfless wife who puts our daughter life over hers. Good... Continue Reading »
Updates on Norah
Posted
April 12 Norah got admitted to the ICU on Tuesday with irritability and developed a fever while we were in the ED. They said she has cholangitis (liver... Continue Reading »
Norah’s Tube placement
Posted
We were unable to maintain norah's weight and calories with the current regimen and formula. She was admitted to get a tube placement to help her grow and... Continue Reading »
Norah’s tube placement
Posted
Norah’s Kasai procedure
Posted