Our Story
Wesley arrived in September 2020 and, apart from the common newborn jaundice, he seemed happy and healthy. At his four-month check-up, Wesley’s pediatrician noticed concerning signs of end stage liver failure. Within 48 hours, we were admitted to Children’s Healthcare of Atlanta where we met with physicians who are 95% sure Wesley has Biliary Atresia. Biliary Atresia is a rare (affecting 1 in 15,000 babies) childhood disease of the liver...
Continue Reading »Wesley Boley
Chattanooga, TN
Transplant Type: Liver
Transplant Status: Transplanted
Goal: $60,000.00
Raised: $27,385 of $60,000 goal
Raised by 49 contributors
Updates
Home!!!
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April 5 We’re home! After two weeks in the hospital, we’re very excited to be back home! The medical team is pleased with Wesley’s improvement and the results... Continue Reading »
Good Lab and Test Results
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April 1 It’s been an eventful day, full of visits from different medical teams, a trip to the sound booth, and a stop at the physical therapy gym.... Continue Reading »
Liver Enzyme high
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March 31 Tonight we’re asking for prayer that Wesley’s GGT level begins to return to normal. The liver team is growing concerned about this specific liver enzyme as... Continue Reading »
Out of Isolation at CHOA
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March 29 Not much to update tonight. The attending hepatologist mentioned this morning that their goal is for us to be very bored over the next few days;... Continue Reading »
CVL Line Inserted
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March 28 The PICC team remembered Wesley from pre-transplant and didn’t want to make another attempt at threading a line in his tiny arms, so they went with... Continue Reading »
Strep now Negative?
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Just spoke with the liver team as well as one of the ID specialists and received some great news. The latest blood culture they drew is negative for... Continue Reading »
Already Better!!
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Wesley is doing so much better! The antibiotics have started to kick in, and he seems to be feeling much better. After waking up this morning he was... Continue Reading »
Flight to Atlanta CHOA
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UPDATE The Flight nurse just called to let us know they safely made it to Atlanta. Wesley slept the whole way and his vitals were good. We should... Continue Reading »
Fever Broke
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March 25 AM Update: It appears that the fever broke last night, so that’s a huge praise! The EEG looks clear and there’s no indication of abnormal brain... Continue Reading »